My Ileum Resection Surgery for Crohn’s Disease

My story of ileum resection surgery in slide-show form. Just pics of how it went for me in hopes of helping someone else in a similar situation. ...



My story of ileum resection surgery in slide-show form. Just pics of how it went for me in hopes of helping someone else in a similar situation. This is the text edit version, so you can read it better :)

My Ileum Resection Surgery for Crohn’s Disease


My story of ileum resection surgery in slide-show form. Just pics of how it went for me in hopes of helping someone else in a similar situation. This is the text edit version, so you can read it better :)

25 Responses to “My Ileum Resection Surgery for Crohn’s Disease”

  1. Anonymous says:

    ~blush~ Thank you for the lovely comment! I have been on remicade in the past and didn’t have any trouble with healing- I’m pretty sure that remicade only reduces the body’s immune response in the intestions so your gums should be fine. Hope that helps :]

  2. Anonymous says:

    You are a beautiful person! You inspire strength and hope for those with Crohn’s. I have had Crohn’s since I was 18 and I am now 32. I have had no surgies but recently my pain and inflammation near the illem. I am going on remicade…however I haven an infection in my gums in my mouth and I am kinda scared!
    Thanks for your video…you are an anwesome attractive young lady! :)

  3. Anonymous says:

    Well it did take me a long time to recover after surgery, way longer than I expected at least. I was only concerned about getting though the surgery, but recovery was about, uh, two months or so. I really wanted to go sleigh ridding and go to thanksgiving, but I couldn’t, so I understand. I was weak and pathetic for a longtime so maybe you won’t be that way :) In any event, good luck, the worst is over!
    shannon

  4. Anonymous says:

    its been a week since i had this surgery, how long did it take till you were fully recoverd from it? im only 17 and im just so anxious to get my life back on track and enjoy the rest of my senior year.

  5. Anonymous says:

    I like the music :) I wish i knew who it was. I’m being tested for Crohn’s tomorrow. Dr. has a suspicion that’s what it is. Very painful and embarrassing. Thanks for sharing your experience and stay strong!

  6. Anonymous says:

    god bless and good luck but stuff haveing that on me i suffer and am suffering right now but i couldn’t bear it

  7. Anonymous says:

    That is wonderful to see/hear! Its great to hear good things. Thank you for sharing your story, it is very inspiring. I, myself am undergoing a resection in a week. I am 29, & was diagnosed 10 years ago. My surgeon is doing it laproscopicaly. I thank you again for sharing, it eases things.

  8. Anonymous says:

    Hi. WOW! You went thru a lot! I know the feeling. I have fought Crohn’s diseas since I was about 13. I had surg. back in Feb and had my entire colon removed. I have an ileostomy now. I am glad that you are doing so well! :-D You are a beautiful lady! TPN and central lines are great, huh? Had that when I was 14, I was about to die. God bless you!

  9. Anonymous says:

    There is a site I found that is great to go too when you have a question about Crohn’s disease. That site is crohnssociety (dot) com. It’s a community site that was created to help people cope with Crohn’s disease.

  10. Anonymous says:

    You should be proud of your scar! You’re a survivor! :D

  11. Anonymous says:

    Sorry that you had too go through this as I can relate! I have had 4 just like this for crohn’s since I was 11 and im now 35! I am now a medication called humira and its one shot every 2 weeks! It saved me from a 5th surgery for 2 years now after I had my 4th one! Just thought i’d tell ya!;-) Take care and stay in touch my crohns bud!;-)
    peaceouTy!

    TAMMpON

  12. Anonymous says:

    dump the shitty music

  13. Anonymous says:

    Check out IBDvideos’ channel for more information on Crohn’s

  14. Anonymous says:

    Thanks for the comment!
    I did remicade and all that junk but it stopped working for me after about 6 months, poo :P The reason I had the surgery and why it helped me so much was that I had a foot long stricture of scar tissue (I should really mention this in my vid XD) You may have the same problem, but be sure. If so then yay for surgery lol.
    ~Sparrow

  15. Anonymous says:

    you are so strong!!!! the surgery is what the docs think the will need to turn to with me….nothing else is really working like it should. i am on remicade through an iv and methotrexate shots and i just got off the TPN cause my line kept clotting. it sucks when the docs cant figure it out….i am their mystery patient. you are such an inspiration :) thanks so much for posting this!!!! p.s. your dog is freakin aborable!!!

  16. Anonymous says:

    oh man….i am so glad the SCD worked for your daughter…i was on it for awhile and it hurt more than it helped. i have major inflammation in my stomach and in my small intestine and it is good for my intestine but it absolutely kills my stomach….the pain is horrible and i have found eating like a normal person helps ballence the pain way better. but the only thing that has totally worked for me thus far is the TPN…it really sucks!

  17. Anonymous says:

    Good to see you looking so well.

    I had the ileum re-section at the start of ‘05 and haven’t had a single symptom since!

    Was even back play rugby 3 months later! But don’t tell the doc!!

    Stops e joining the Army! Even though I’ve had no symptoms for so long :( !

  18. Anonymous says:

    Many are realizing that dairy is the REASON so many Americans are getting sick. This diet works!You start with certain foods that work for your body. After a while much of the stuff you couldn’t eat is no longer a problem. Those are called “advanced foods.” Thousands of people follow this diet. People really need to read the science in the website. Google “SCD diet main”….it can change your life. There’s a great SCD online group too!
    People if you have Crohn’s …DON’T be eating dairy!!!

  19. Anonymous says:

    As I’m sure you know, everyone is diffrent. I’ve tried certian diets and foods. I know what I can eat, and what I should stay away from. I checked out that SCD diet on Wikipedia and there are some foods (allowed foods) in there that would just kill my gut! Cheese and milk arn’t bad for me. Thank God because I love dairy! But thanx for your reply and your comment! I’m balanceing it pretty well now. No major flair ups.

  20. Anonymous says:

    Have you tried or heard of the SCD diet? It saved my daughter…she’s not even on meds!

  21. Anonymous says:

    I’m glad it really helped you,chronhs is a horrible disease,puppy is so cute,good luck,you looked so much healthier after the op,colour is back in you!!

  22. Anonymous says:

    i got a puppy right before surgery too!!! =] glad everything went well

  23. Anonymous says:

    Hi, a brave lass you are. I’ve just been though the same surgery myself and it hurt pretty bad. Getting better now though.. although i think i’ll have a bigger scar than you ;)

    Great video and good luck!

  24. Anonymous says:

    yeah it was for bowl rest. I had a softball size abscess in my sigmoid colon. I had to have it drained and then heal for about a year. I’ve went through hell. You should check out my video…”Mein Kampf” it means “my stuggle” in German. (I’m not a Natzi) Anyhow it shows a couple of pics when I was in the hospital. If you watch it, let me know what you think. PEaCe :)

  25. Anonymous says:

    What do ya mean, “my dog is cute…kinda.” She is most freaking cute dog in this whole goddamn world! Anyway, I was just wondering what the temp ostomys are about? I know a lot of ppl have em done only to be reversed a relatively short time later, but I’ve never known why. Bowl rest maybe, but then why not just do tpn?
    Thanks for the comment, and I’m glad to hear that you are well now.

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