Crohns Colitis IBD and IBS info

13 Responses to “New Crohn’s Drug-Mayo Clinic”

1. Anonymous Says:
   
   December 1st, 2009 at 1:31 am

   I hate having Crohn’s disease. It’s the worst pain you could ever imagine.

   But,

   I’m on the same research trial as her. That drug works so well XD

   
   
2. Anonymous Says:
   
   December 1st, 2009 at 1:31 am

   Constant diarrhea!? i feel sorry for anyone with chrons disease

   
   
3. Anonymous Says:
   
   December 1st, 2009 at 1:31 am

   i have crohns.

   
   
4. Anonymous Says:
   
   December 1st, 2009 at 1:31 am

   i don’t care when. the whole biologics and immuno-suppressants are retarded treatments. the biologics are more than immuno-suppressants; they are immune system shut downs, albeit they only target specific molecules, but they happen to be pretty important molecules

   
   
5. Anonymous Says:
   
   December 1st, 2009 at 1:31 am

   i don’t care when. the whole biologics and immuno-suppressants are retarded treatments. the biologics are more than immuno-suppressants; they are immune system shut downs, albeit they only target specific molecules, but they happen to be pretty important molecules

   
   
6. Anonymous Says:
   
   December 1st, 2009 at 1:31 am

   just google “tysabri approved for sustaining remission”

   the FDA approved it in January 2008 for exactly that.

   do you have Crohns ? a lot of patients run out of options.

   
   
7. Anonymous Says:
   
   December 1st, 2009 at 1:31 am

   Not “February of this year” but February 2005.

   And the Crohns patients died in 2003 !

   The PML didnt kill them, but mis-diagnosis did – in all cases they got stuffed with immuno-suppressants, allowing the virus to multiply (sort of like Aids).

   Of course, law-suits followed.

   
   
8. Anonymous Says:
   
   December 1st, 2009 at 1:31 am

   just google “tysabri death”

   and imagine if people take this for the long time you believe it is supposed to work for.

   If you have clinical trials of it being proven to work a long time for Crohn’s I would love to see them

   
   
9. Anonymous Says:
   
   December 1st, 2009 at 1:31 am

   “The rare condition, called progressive multifocal leukoencephalopathy, or PML, was contracted by two patients on Tysabri and revealed in February of this year, after which Biogen Idec suspended marketing of the drug. Since that time a third patient who had been taking Tysabri for treatment of Crohn’s disease, a bowel condition, was later confirmed to have died from PML.”

   
   
10. Anonymous Says:
    
    December 1st, 2009 at 1:31 am

    Well I believe 35,000 MS patients are on Tysabri, and there have been zero problems in 2 years.

    Drugs like Remicade and Humira have proven nothing except in the very short-term. We need Tysabri because it KEEPS Crohnies in Remission.

    
    
11. Anonymous Says:
    
    December 1st, 2009 at 1:31 am

    Probably excluded tysabri because it causes deadly brain viruses, but then again, remicade causes deadly cancers and that hasn’t stopped them

    
    
12. Anonymous Says:
    
    December 1st, 2009 at 1:31 am

    2/3 is a joke and target just the intestines is flat-out deceit; how does stopping one’s inflammatory cytokines that are all over the body amount to targeted therapy.
    How about they include RMAT therapy or low-dose natlrexone or hookworms?

    
    
13. Anonymous Says:
    
    December 1st, 2009 at 1:31 am

    Hi,

    Why did you exclude Tysabri from your video?

    It is approved by the FDA to SUSTAIN Remission in Crohn’s, and of course actually STAYING in Remission is the important thing to us.

    Please CORRECT this video so that we have ALL of the options available to us.

    Thanks You.

    
    

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