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November 23rd, 2009 at 11:49 pm
I never feel an urge to run to the bathroom , I can always hold as long as I want.
I have occasionally J-Pouch Spasams but it not so bad , in the first days I had more of it but now I rarely feel it.
and I never took Imodium , my stools are normal most of the time.
November 23rd, 2009 at 11:49 pm
ThatGuyRusty
Like Dennis said it depends , Personally I felt great from the first day after the takedown. I’m only 22 days after the takedown and for now I had no problems , I go maybe 4-5 times a day to the bathroom and I sleep the whole night (can be from 6-10 hours maybe more).
in the beginning I had little problem passing gas without going to the bathroom but i’ve learned how to do this.
November 23rd, 2009 at 11:49 pm
That should read the I am 6 foot 1 not age 61. I am 29 and have had Chrons for 15 years but only diagnosed 4 years ago. I am stubborn.
November 23rd, 2009 at 11:49 pm
With this diet I havent looked this good in 6 years! But you have to be 100% consistent and dont change it. I refused the big drugs , remecade, humera etc.
Sorry if this was rambling but I have found success,,, or temporary success thus far. Thanks again man.
November 23rd, 2009 at 11:49 pm
for lunch I will have 2 more asacol pills and some kind of meat then for dinner I will have mostly ny strip steak and some kind of noodle but stay away from red sauce and 2 more asacol pills .. The thing that I have found that works for me is a ton of meat and the most amount of calories per ounce.
November 23rd, 2009 at 11:49 pm
I have Chrons and my intestine popped into my leg causing me to limp. I left the hospital weighing 136 pounds after being in there for 15 days and I am 61. After 3 months after the last surgery I am now 185. My diet consists of 2 ASACOL pills in the morning along with 1 and ½ Imodium, 6 sausages (microwavable), 1 large glass of milk and 3 hostess cupcakes
November 23rd, 2009 at 11:49 pm
I had a colostomy bag for 4 months. Man did it suck. But THANK YOU for your videos. I am as back to normal as I ever have been.
November 23rd, 2009 at 11:49 pm
The first month depends. After the first few surgeries, you’ll have pain from the surgery and everything and the hardest part is getting used to the ostomy. If you are referring to the first month of using a J-pouch, after all the surgeries, again it depends. Some people do very well and only have problems the first couple weeks. Some people have very bad problems and it takes months to get on track. But for all people, regardless of which category you are in, it takes months to get comfortable.
November 23rd, 2009 at 11:49 pm
Watching these videos on the after effects of surgery is kind of nerve wracking. I’ve been living with a VERY bad case of UC for about 2 years on Remicade (this New Years Day It’ll be exactly 2.) Eventually I’ll most likely have to get surgery but that’s within the next 5 years, and hopefully new medicines will come out. I’ve always thought about surgery and these blogs helped out a lot, but I’ve had one question: from what you are saying is, the first month or so is pretty bad?